9.30.2009

Our Gluten Casein Free Disney Dining Review

Even the ketchup is magical at Disney

If you have a child with a food allergy, or who is on a special diet - like my son, Alex - who is gluten and casein free.. dining out can become nightmarish and maybe you feel like you can "forget about" going on vacations unless you plan on preparing all of your own meals.

Well, the good news is that there are places that you can vacation and Disney is one of them.


One thing about Disney is that dining at their "sit down" or Table service restaurants is highly in demand and you need to make what is called "Advanced Dining Reservations" (ADRs) 90 days in advance. You can now book these online at the Disney website as well as through the the Disney Dining reservation line. This is especially important if you are dealing with a food allergy because the restaurants can bring in special food for you, but they need notice!

When you make your reservation you can state that there is a food allergy on the reservation. I found a wealth of information at the DisBoards.com message board site including restaurant reviews and suggestions for what places are 'favorites' for gluten and casein free diet. Of course, what type of restaurant and meal you like also is a personal preference and so I like going to the AllEars website and also looking at menus on the Disney website when selecting places to dine. Now that I've navigated the Disney parks and dining system a few times now, we have picked some favorites that we like to repeat as well as trying out a handful of new places. My family uses the Disney Dining plan which is a prepaid meal plan (and sometimes Disney offers this mealplan free - the case with our recent trip) which allows for 1 sit down and 1 cafeteria style meal per day per guest plus a snack.

When dealing with a special dietary request at Disney it is important to read and become familiar with Disney's policy listed on their website here: http://disneyworld.disney.go.com/guest-services/special-dietary-requests/ I also emailed Brenda Bennett at Disney (Special Diets) and received a list of all the restaurants broken out by park and whether it is a Counter Service or Table Service location that are No Gluten and a separate list by Food allergy (Nut, Dairy, etc). So I had to do a little bit of cross referencing but I had a list of which restaurants had certain types of food that could accomodate us best. She then had me complete a form that listed all of our dining reservation confirmation numbers and dining restrictions.

Overall, our dining experience at Disney was excellent for Alex with his gluten and casein free diet and we ran into very little issue finding food for Alex and keeping him well fed. In fact, even though he is under 9 years old and would normally be ordering off of the kids menu he was able to eat larger portions and keep his belly filled because of the "custom" meals that the chefs made for him -- even at the counter service restaurants. He ate like a king and even expanded his food repertoire and started eating chicken that was not in a nugget or tender form and potato that was not in french fry or tater tot format. He also tried and liked rice! These may seem like small things but for a child who is extremely picky and selective about foods it was huge.

At the Sit Down restaurants a chef would come to our table and discuss food options ahead of time letting us know what they could prepare and asking what Alex would like. They always checked back during the meal to make sure everything was OK and offer to make additional food, too!

At Counter Service locations, you need to ask for a manager who will pull out "the allergy book" and let you know what foods are available for the diet. Some examples of gluten free items available are Ener-G gluten free hot dog and hamburger rolls, French Meadow gluten free brownies, and Allergy Free Foods chicken tenders (this is our holy grail GFCF chicken!)

We ate at the following locations

Counter Service:
Coronado Springs Resort - Pepper Market
items included grilled chicken, separately grilled fries, hot dog, soy milk

Magic Kingdom - Columbia Harbour House and Cosmic Rays
Columbia Harbour House was actually our favorite for Alex because they served the Allergy Free Foods chicken tenders and fries - both baked separately for him. We got very good service here even though we entered the restaurant near closing time.

Cosmic Rays is a very very busy and large fast food place in Tomorrowland. There is an animatronic show that was entertaining and at the same time distracting for Alex. He had a hot dog on a Ener-G gluten free bun here, baked fries, and a gluten free brownie here.

Hollywood Studios - Studio Catering Company
Alex ate a chicken drumstick here

Animal Kingdom - Restaurantosaurus
Alex ate a hot dog on an Ener-G gluten free bun here

Epcot - Sunshine Seasons
Alex ate here twice. We had planned on going to Liberty Inn (America) in the international section of the park for standard faire but Alex didn't make it that long and was so hungry he ate a chicken drumstick (for the first time in his life not counting the turkey leg he ate when he was one year old). He loved the chicken drumstick so much that we ate here again and he also was eating rice at this point, so he had some steamed rice also and a gluten free brownie.

Also we picked up snacks throughout the parks at various concession stands and many had items like soy milk, rice dream and tofutti dairy free desserts, and gluten free brownies.

Alex eating dairy free ice cream (from the ice cream parlor on Main Street) watching a show in front of Cinderella castle. Two years ago, he couldn't tolerate the hustle and bustle by the castle and this same LOUD show. This trip - he loved it.









Sit down (Table Service)
:
Magic Kingdom - Cinderella's Royal Table Lunch
I was worried whether this would be worth it or not, because it takes 2 credits on the Disney dining plan instead of the usual 1 credit, but we wanted to eat here for my daughter after her Sleeping Beauty makeover at the bibbidi bobbidi boutique.

It was totally worth it. Alex got a feast including an appetizer of a fresh fruit cup, entree of grilled chicken with potatoes and carrots, dessert was a rice dream sundae. He enjoyed the princesses mingling about and getting photos and autographs. Alex LOVES the Cinderella castle and spent most of his trip talking about the Cinderella castle and wanting to see it, so to go inside and dine there was a real treat for him.


They did, however - give all the boys in the place a sword and all the girls a magic wand which the kids put to use as weapons while they ate.. ugh. Well, at least they are eating and fighting at the same time - right?














Also, on a humorous note -- Alex tried to cut his fresh melon with the plastic sword. Kurt had been working with him on cutting his food with a knife, so we got a chuckle when he tried to use the sword. Boys will be boys - autism or not!









Epcot - Akershus Dinner (Norway)
This is another princess meal that we had booked, largely for my daughter. We'd eaten here before at lunch time and even though the food is a little 'different' (norwegian fare) the princesses are super. I had originally thought of doing Breakfast here but since on principle my family doesn't get up real early and we already had 2 other character breakfasts booked I opted to go for dinner. I am glad we did. We had a late dinner which was actually during the fireworks and when the fireworks went off the kids insisted on running outside to catch a minute or so of the finale. The princesses were dazzling, and our meal was very good. My daughter had to order from the kids meal and get an english muffin sized pizza. Meanwhile, Alex - who couldn't order anything off the kids menu got a feast made for him that I would have enjoyed. It was his typical "grilled chicken, potatos, plus corn" meal. This was his staple meal in Disney but Alex is the type of child who will eat the same meal over and over. There were other options that they could have done gluten free and dairy free but this is what we requested for him time and again because it is food that he likes and we know he will eat.











The highlight of this meal was, however, when dessert came - it is something as simple as an Itzakadoozie popsicle but the smile says it all. My daughter might have been jealous about this giant ice pop, but check out the dessert trio in front of her that was served family style to the rest of the table.












Epcot - Le Cellier Dinner

My husband wanted to go here because they have great steaks. Unfortunately Alex's gluten free meal was really not so good here overall even though it was the same types of favorite foods he had been eating elsewhere (chicken, specially baked fries, dairy free ice cream, etc). The chicken was pan-seared and very dry and Alex kept saying it tasted like mustard. This was funny to me because for the life of me - I don't remember Alex ever eating mustard in his entire life but he has sniffed mustard before and he sniffed the chicken and ruled that it was cooked in mustard. He didn't eat more than a few bites of it. What saved Alex at this meal was the fact that the kids menu was an activity worksheet with puzzles and wordsearches that were all either UP movie themed or Wizards of Waverly Place. It was a good save because the food wasn't very good here for him.

Contemporary Resort - Chef Mickey's Character Breakfast
My kids love Chef Mickeys for the character mingling (Mickey, Minnie, Donald, Pluto & Goofy). In the past, we have dined here at dinner and found the food to be 'ok' and plentiful but not real spectacular. We decided to try breakfast here which is the standout breakfast buffet and very hard to get dining reservation. Definitely go here for breakfast and you will not leave hungry!

The server let us know that the "allergy child" and one adult needed to stay at the table til the Chef could come over so I stayed back with Alex while my husband and daughter went off and filled their plates. Chef Les came over and sat down across from Alex and talked to him about what foods he might like. He figured out right away that Alex was autistic and when I asked about making Mickey Waffles GFCF he asked Alex if he liked Waffles and Alex told him yes, with syrup! He let me know what foods were GFCF on the buffet and cooked separate and I was given the go ahead to get him fruit, bacon & sausage, and tater tots. He came back just a few minutes later with a plate full of sliced bananas, grapes, and specially prepared dairy and gluten free Mickey waffles and even his own syrup cups.



















Polynesian Resort - Ohana Character Breakfast
Breakfast with Lilo, Stitch, Mickey and Pluto was a favorite when my daughter and I dined here in February '09 so I wanted to come back with the whole family. Since food is served family style, the chef brought out separate food for Alex. He ate 5 (or maybe 6) Mickey waffles made gluten and casein free and some fresh watermelon. Alex loves orange juice but wasn't a huge fan of their special orange and tropical fruit blend juice.












Polynesian Resort - Ohana Dinner
Dinner at Ohana is served family style also and consists of various meats served off of skewers (chicken, shrimp, pork, steak). It is all prepared with soy sauce that is not gluten free - his entire meal had to be made by the chef in the kitchen. I had heard raves and raves about Chef TJ at this restaurant and how great he is with gluten free and allergy kids. Well, as our luck would have it - he wasn't the chef on duty that night for us. I was bummed but as my daughter says "you get what you get and you don't get upset". As it was, the chef said he could make him any of the meats but Alex opted for Chicken (again!). For dessert, the rest of the family had a bananas foster and bread pudding dessert and Alex had a rice dream ice cream.

Animal Kingdom Lodge Resort - Boma Dinner
This is one of our favorite restaurants at Disney, located at the Animal Kingdom Lodge. We like this restaurant for the plentiful buffet and it is great to go to (by Disney bus) after a day at the Animal Kingdom park. Boma is in Jamba House, the main house of the Animal Kingdom lodge resort which also has animal viewing areas. This is a buffet restaurant so the choices for Alex were very limiting. The chef came and walked the buffet with me and basically Alex could have the prime rib (but he doesn't like beef), lettuce, or fresh fuit. Because everything either had gluten or dairy in it - he made Alex a huge plate of grilled chicken, potatoes several different ways, rice, beans - plus fresh fruit.













They didn't have a dessert option and he went to other restaurants at the resort and ended up coming back with a fruit cup (like jell-o) that was gluten free and some candy. It wasn't a great dessert but Alex didn't care and the effort that he put into seeking something out was stellar.

We loved this chef! Look at the smiles!












Disney really made dining out enjoyable for the entire family and one very happy and not hungry GFCF kid.

Magical Milestones from our Disney Vacation

First, while it is all still fresh in my mind - I thought I would recap some milestones that Alex made on our Disney vacation.

--in no particular order--

  • Swimming in the pool without the use of swimmies - above and underwater. We didn't take the camera to the pool. I wish I had, he was watching other kids and copying them. He tried to play with a little girl and she even played back a little bit. I think she liked that he was watching and she was showing off a little bit. He thought she was a little girl that he'd gone to camp with!

  • Watching fireworks without screaming. He was plugging his ears, but so were many many other kids (and adults too). Those fireworks are loud - intense, and music is playing too. If you look real close in the full length picture below you will see a little girl in the background also covering her ears, that little girl didn't have autism!







  • Watching the live performance in front of the castle without screaming - in fact, we couldn't pull him away from this. Ok, the dairy free ice cream was also a big treat!








  • Eating chicken in a form other than a gluten free nugget or strip! He is now eating grilled chicken, pan-seared chicken, and his latest favorite... chicken drumsticks! Also eating potatoes in a form other than a tater tot or french fry - he is now eating them whole & quartered - steamed, boiled or grilled! Other new foods added to the repertoire like steamed white rice. Read our Gluten Casein Free Disney Dining review here

  • Cutting food with a knife
  • Sitting through an entire "live" show (Finding Nemo at the Animal Kingdom park)


I'll come back and add here as I remember them - even just a day out of the vacation I can't seem to put it all together.

We're back!

Did you miss me?

Well, if you wondered where I've been or don't follow me on Twitter... the answer is

Disney!

We love it there. Not only is it the place that my husband and I celebrated our honeymoon, but it is also where we've gone back for our 10th anniversary and now.. our 12th! Disney is super acommodating for children with autism and also with dietary restrictions and food allergies, so it is a win-win vacation place for us all around.

And now, we are back "home" where - as my husband put it - food is purchased with dollar bills and not snack credits.

9.13.2009

Belmar NJ Surfers Healing Autism 2009

We headed off today for a family day at the beach and surfing in Belmar, NJ. Alex took part in a surf camp with Surfers Healing and we attended the Beach Bash by Autism Family Services NJ. It was the first sunny day here after several days of rain. The waves and beaches have been rough lately and I was a bit nervous. Just a week ago a teen was pulled under the waves in Seaside, the undertow is very scary. I know that the surfers are all trained and Surfers Healing does a great job keeping the kids safe, but I was a bit apprehensive this morning. When I saw how rough the waves were, I wondered if they would shut down early like last year.

The Beach Bash was extremely organized right from the sign in. We got wristbands - and also since we were part of the surf camp we got more wristbands that gave us access to the food tent sponsored by Whole Foods. They had music (loud but not blaring, thank you!) , kiddie games, and vendors. I was able to get both kids photo-ids and fingerprinted. Also, there were some gluten free vendors that passed out samples of cookies and crackers (also dairy free). This was good because the lunch tent didn't have as much gluten free food as it has in the past - just your typical sandwhiches and chips, plus fresh fruit that the kids devoured. Both kids also enjoyed Italian Ice samples, that were messy but refreshing.

While we waited for our time to surf they played in the waves and in the sand. Alex has been big on burying himself in the sand this year. I know this is a big sensory thing for him but OMG it is so messy. I think he must have had to go into the water about 100 times just to rinse off and no sooner would he rinse off he was laying back down in the sand again. But, he was having fun and this kept the kids occupied for a long time. It also meant less having to chase them or worry that they were going to be pulled under the rough waves.

When it came time to surf, he got his lifejacket on and waited to be paired up with a surfer. Alex got paired up with "the surfer girl" as she shall be referred to. I didn't catch her name, but he seemed quite tickled to have a very pretty blonde surfer girl! Lucky Boy!

They paddled out and waited to catch their wave.













All the kids and surfers were in a queue and one by one they came in. I was surprised Alex didn't stand up this time as he has in the past with surfers healing. I think he felt more stable and liked to be up close and personal by kneeling!














As you can see, he liked his "Surfer Girl!"














Alex had a
big smile on his face, and of all things... a jellyfish in his hand! He was very proud of that jellyfish (yuck) but I made him throw it back into the water. It was probably dead, he didn't get stung - but it isn't something to play with!

Next up, Alex got to go on a jet-ski ride. He was pretty stoked to do this and ran hand in hand with a bunch of lifeguard volunteers when it was his turn.















When they loaded him on, he wanted to kneel up and ride it like a daredevil.














Of course, they didn't let him ride like that! As you can see in the picture, they are almost laying on top of him, to hold him on the board and keep him safe.














Fun times! Alex wanted to do this again after he got off - I can't blame him as it looked like a blast.

Alex love Surfers Healing!
Thanks Surfers Healing, and to all the surfers and volunteers who made this a magical day for kids with autism & their families.

For more info: http://surfershealing.org
follow them on twitter @surfershealing
Visit the Surfers Healing Store for fun apparell & accessories


Related Autism & Surfing links


my daughter's footprint in the sand

9.09.2009

Why I'm against the H1N1 (Swine Flu) Vaccine

A lot of people have asked me how I feel about the H1N1 (Swine Flu) Vaccine, and will my kids be getting this shot. Now, I thought it would go without saying that I am against this vaccine based on my stance against the seasonal flu vaccine.

No, my children and our family do not plan on receiving the Swine Flu shot. No way. No how!

I feel that the risks associated with this shot are far more than getting the (Swine) flu virus. I do believe that the shot is more deadlier than the virus itself, and I know I'm not alone in feeling this way.

Reasons I am against the Swine Flu Shot
  • The nutrient solution for the H1N1 vaccine contains of cancer cells from animals. It is completely unknown if injecting these ANIMAL CANCER CELLS will increase the risk of cancer for recipient. Also, there is no data on if it may cause an allergic reaction when injected. What about the possibility of the vaccine causing cancer?
  • It is made with cultured cells from the African green monkey that has been implicated for transmitting vaccine-contaminating viruses, including HIV.
  • The viruses in the H1N1 flu shot: 3 flu strains including Avian flu, SARS, and the Spanish Flu.
  • In 1976 when the Swine Flu vaccine was pushed, it resulted in a widespread increase in Guillain-Barre Syndrome (GBS) which is a a paralyzing neuromuscular disorder. The vaccine ended up getting pulled - but it was too late. Many people were sick or dead as a result of the shot. Will the "new" swine flu vaccine carry the same risks for GBS, yes it will.
  • The Swine Flu vaccine will be using Squalene as an adjuvant - which is not even approved by the FDA (at this time - I'm sure they will rush it through, those greedy bastards). Squalene is an oil-based adjuvant with known auto-immune responses like chronic inflammation, impacts fertility, and caused death and MS like symptoms in rats.
  • It contains MERCURY - a known neurotoxin!
  • A serious lack of testing yet they will recommend this for children, pregnant women, the elderly, and those chronically ill (asthmatic, etc). The most fragile and vulnerable populations and the ones with the most to lose stand to be used as guinea pigs!
No, no swine flu vaccine for us.


A better option is:

  • Staying well rested
  • Good hygiene & handwashing
  • Taking Vitamin D
  • Getting Exercise

Have you thought about All The Bunnies?

Over the summer, I received a copy of the book All The Bunnies from the academy of special needs planners. Ironically, I received this book the month that my father passed away - making the slim 40 page book resonate even moreso.

The book is a compilation of "heartfelt stories from those who've dealt with the challenges and joys of persons with special needs".

You can purchase it from the Academy of Special Needs or get it electronically - it can be downloaded for the kindle on Amazon.com

The title "All the bunnies" conjurs up warm and fuzzy feelings, but thinking about what the future holds for my child often leaves me feeling sick to my stomach. I worry that the burden will fall to his sister who may resent her brother and family. As I read the anecdotes I found myself going the full gamut of emotion from nodding - wow, that is so like us - to shaking my head, nope - not us/denial. The topic scares the heck out of me, especially since my father passed away - he was always the 'money' person, always the planner, always the one who took care of the family and made me feel protected. Now, I know and feel more than ever our mortality. And I admit it, I am scared.

I find myself reminded often by the wild bunnies in the neighborhood who frequent our yard and neighbors. My children love these bunnies and have taken to leaving them (organic) carrots. My son always wants to take a picture of the bunny and once the bunny hops away he likes to hop about the front yard holding up 2 fingers (bunny shadow puppet style).

Yes, we must look after All The Bunnies.

09.09.09 How Much Longer? For Autism








Today 09.09.09 a campaign is taking place called HOW MUCH LONGER? for Autism, spearheaded by the National Autism Association. Learn more about the 09.09.09 campaign in this radio interview with WINA's Coy Barefoot and NAA president Wendy Fournier. Click here.

How Much Longer?

The campaign is a mass faxing/mailing/calling campaign that will cover community-wide autism issues on Wednesday, September 9, 2009 (09.09.09).

With autism now affecting 1 in 100 children, it’s time to set aside polite requests and boldly ask the entire nation HOW MUCH LONGER?

Below are links to samples of the messages you can forward on 09-09-09 via the The NAA Action Center - which will automatically send your messages to your legislators, federal health officials and the media.

Click here to TAKE ACTION NOW!

HOW MUCH LONGER MESSAGES

How Much Longer, Tom Insel and NIH?

How Much Longer, CDC?

How Much Longer, ACIP?

How Much Longer, Mr. President?

How Much Longer, FDA?

How Much Longer, DOE?

How Much Longer, AAP?

How Much Longer, America?


Click here for links to jpg and pdf files of our How Much Longer messages to download and post these on your websites, Facebook pages, etc.


In order to hear their voices, we must first raise ours.

9.08.2009

And on the First Day of School

My crazy kids were up and ready, bellies full and backpacks loaded for the first day of school (3rd grade and Pre-K!)












My son is such a goof. He has a great smile, but getting him to give you one on command is a whole different story.











The "wierdest" thing was waiting at the bus stop. Our corner is the bus stop for all the neighborhood children. But, since Alex is in special ed - he gets "door to door" transportation, meaning a special bus with an aide that gets him at the end of our driveway. In the past he went to a different school (not the "home" school) than the children in our neighborhood. Because his school was on a different schedule he waited inside and it didn't overlap at all with the other busses and waiting kids. But, this year he is in a "new" school for him, that happens to be our home school. So - we were waiting for his bus at the same time the big group of kids all waiting for their bus. I guess, it hit me hard to be waiting there and trying to be so excited for him going to 3rd grade when there are kids around his age also waiting and they are all taking the "regular' bus. Still, after all these years - moments like this still give me a lump in my throat.

The bus was much later than anticipated. We waited and waited. I wanted the bus to hurry up and get there - I didn't like that feeling.

As it was, I had to leave my silly big guy behind with his Dad and take his little sister off to preschool so she wouldn't be late for her first day.

Thankfully, I still got the obligatory "getting on the bus" picture via Daddy's blackberry.









And off he went!

We are looking forward to a great year with a new teacher and new school, but many "old" friends. Exciting stuff ahead, I'm sure!