Monday, September 6, 2010

Thomas Trains FOR SALE : The End of An Obsession

Its been long overdue, and my son's traintable has served lately more of a laundy folding table than for play. But, every time I mentioned packing it up or passing it on - Alex has flipped out and demanded that he need to keep his trains.  Like many kids with autism, the trains - Thomas in particular - became an obsession for him. The hours he would spend lining up the trains or setting the tracks up "just so" - he loved those trains beyond words. 

And so now here we are.. years later and my going into 4th grade child still has a train table in his room.  The time for it to go has been long overdue.   Not only would it clear up a lot of space in his room, it would make another child very very happy.    Yesterday I asked Alex  if we could sell his trains. I told him he could have some of the money for spending money when we go on vacation or for whatever he would like to buy.   I also told him that I would set up his electric keyboard with stand that is new in the box and unable to be setup until he gives up the traintable for space.  He said yes, and then said no - and then switched back - and said yes. 
 
Before he could change his mind again I went into his room and put them into their proper bins and took some pictures so I could put it on craiglist.   I listed it high figuring I'll take a lower best offer - I know from when I sold all his Fisher Price Little People toys (another huge obsession) this worked well.

So.. anyone in the Jersey shore area looking for trains?



Thomas Traintable, Trains, track, buildings & more - $400 (Brick NJ)

Thursday, September 2, 2010

The first day of school!

Well here we go again!

Back to school.


Alex is in 4th grade and continuing on with his current program with a bit of mainstreaming planned for math and science.  He's continuing to make great progress and was very happy to get back to school.  I was thrilled that he wanted to re-use his Wall-E backpack and even happier when I found out he had the same bus # as last year - the less change the better for him.

Off he went!


Today was a big day here because his little sister was also going off on a bus... to Kindergarten.  So our morning routine has gotten a bit more hectic and will take some getting used to.   But, off she went.. and came home 3 hours later very tired from her first day. She's in the class of 2023, now that is hard to believe.

Saturday, August 28, 2010

Camp Bridge is over but the fun(ny) memories live on


Alex had another fun summer that included swimming lessons, bike camp, baseball games, beach days, extended school year, surfing, music therapy and his favorite - Camp Bridge!

This year we signed him up for 2 weeks at Camp Bridge (in August) and he was so excited and ready to go each day to camp.  The weather during week 1 was great and they swam every day - he came home exhausted, a good thing.

Halfway through the week he reported to us that he learned how to kill a snake at Camp Bridge.  He went into gory detail about how you kill a snake.  My husband and I were a bit horrified by this fact, but something told me he was 'telling tales out of school'.  When I asked the director she confirmed that they did not kill a snake, in fact they hadn't even seen snakes this year.  Last year, however, they did see a snake on their nature walk which I remember him talking about.

Week 2 began with colder weather and some rain. However, the sunny part was that Miss Beth, one of the directors who runs the camp, was back this week. He loves Miss Beth and had missed her from the previous week (she was away in Disney).  When he saw Miss Beth, the first thing he asked her was "How was Disney?" and he was actually conversational with her.   I love to hear when he makes improvement in this area!

One day when I picked him up, she told me that he had taken out the trash for them - without being asked. He just did it.  They were impressed! Alex loves to help, and one of his "jobs" at home is taking out the trash, so when they told me about this I wasn't real shocked.

On one of the cooler days, they took a trip to a local farm which he really enjoyed. He did not, however, like the way that the pigs smelled. STINKY City!






The highlight for me was this "report" that I got from Miss Beth on the last day of Camp.

He is very literal. He asked if if he could get rid of a wet chair with soda on it at lunch time and I said yes then he threw it over the railing into the woods. The counselors looked at me to see why I didn't yell at him and I laughed and said I told him to get rid of it and that's what he did. Haha!
This is priceless to me.  I can totally see him picking up the chair and tossing it over the railing of the pavilion and into the woods.  While I am sure that is not quite what she had in mind by "getting rid of it" - I am so glad they "get" why he did what he did.   And, yes - I'm still laughing about it!

What a great way to end summer - with a smile on our face!

Related Links: 
Camp Week - A visit from the Therapy Dogs
Camp Bridge - Taking Autism To Camp

Monday, August 23, 2010

He's ready for a wedding or a party, Who's inviting?

So a few weeks ago, I shared how the first week at music/movement therapy class went - or rather didn't.. It was tough to see Alex meltdown and struggle over the environment. He has come so far over the years that maybe I have taken a lot for granted. Maybe I needed that wake-up call/smack in my face to remind me that after all, my son is autistic and has sensory issues. So many of his sensory hurdles have been put behind us, so I hated seeing him have a hard time.

 This is video from the first week - doing the YMCA song and you can see him doing it, but "shhushing"  at the kids around him to be quiet.

video



The next week, before class I made a point of going to YouTube and we looked up videos of the YMCA, how to do the macarena, and how to do the cha-cha slide.  I let him watch them over and over again.  He loves YouTube and I purposefully limit his exposure to it because 1) he could get into stuff he shouldn't on there and 2) he will watch the same movie over and over and over again.. We call that "You Tube Stimming" and I know that I'm not alone in this...many of the autistic kids I know like to do this.   So I purposefully encouraged YouTube stimming on videos that had to do with learning these 'party/wedding dances'.

Here's what happened that second week when they did the YMCA song.  Watch around the 1 minute mark for a remarkable Alex!
video


What a big difference, huh?  Instead of the child who was telling others to be quiet. He was the loudest one.  Ok, so we need to work on that a bit.

He also enjoyed learning the Electric Slide, with the help of one of the moms. And his favorite, they did Eenie Meenie (a Justin Bieber song). 

Week 3  showed even more improvement and he is now doing all of the above dances plus the Cha-Cha Slide and the Macarena, independently.

This week will be out last session, Week 4 - and  I know he'll be sad for "music class" to end.  What a fun time. And another sensory hurdle has been jumped!  

Tuesday, August 10, 2010

Surfing in Seaside with POAC & Sharks

Alex & his boogie board
Alex loves the ocean and looks forward each summer to the various surfing events that take place hosted by organizations like POAC, Best Day Foundation, Brick Recreation, and Surfers Healing.   His favorite one year after year is the POAC surf in Seaside Park.  There's been sharks lately in Seaside (and all over the Jersey Shore beaches) but we went anyways.

The kids were excited so off we went to the beach. This was a milestone in and of itself since I went with just me and the kids and no second adult.  I couldn't have done that in previous years but this year I've actually braved the beach many a time with just me, myself, and I.

So we loaded up the Wonder Wheeler Beach Cart, packed his BZ BodyBoard, and off we went to Seaside.  The kids had a blast playing in the water and Alex even let me uses his boogie board - wow, now I know why he loves it so much. He had a late surf time of 4pm and by that point the waves were pretty intense. Alex was ready to go catch some waves and he got matched up with his Surfer - I think his name was Sean.

I hoped to get some good pictures but after taking 2 pictures of him with his bodyboard my camera battery died, which meant I could only use my android phone to take pictures.  I was able to capture a few moments but the picture quality isn't that great.  Regardless of pictures, he had a blast and caught some pretty big waves!  He kept getting flipped off of the board and swallowed more salt water than he could care to. I am so glad I had him in swimming lessons this summer, because his swiming skills were certainly put to the test.



Read about more of our Surfing Adventures with Autism here

Sunday, August 8, 2010

Jim Dowd's Shoot for the Stars Foundation donates $10,000 to Brick Stars

Jim Dowd's Shoot for the Stars Foundation chose the Brick Stars as their recipient this year for the proceeds from the annual Ocean vs Monmouth All-Star high school game.  The game took place on August 8, 2010 at the Red Bank Armory.  Several of the Brick Stars special needs hockey players were at the game and were given a chance to go out on the ice to play a 5 minute game.  The kids were joined on the ice by NHL hockey superstar, James vanReimsdyk of the Flyers as well as Jim Dowd.



Belle and the Jersey Devil Mascot
Related Links:
Alina DePalma, Isabelle Wurmser & James vanReimsdyk
Belle gets onto the ice for the Brick Stars mini-game